Patients with kidney failure … the suffering of “the five stages of grief”

0
17


Specialists confirmed that the number of kidney patients in the Kingdom currently reaches 17 thousand, an increase of 10% annually, while the cost of washing for the patient annually in 2018 reached about half a million riyals.And they mentioned that the percentage of those who receive kidney transplantation in the Kingdom by donors is less than 5%, while those who go abroad for kidney transplantation represent 2.5%, and they said that the rates of kidney failure disease are close between women and men, and that smoking is one of the biggest causes of kidney failure, in addition to For soft drinks; Because it leads to stones, raises blood pressure and diabetes. They added that the statistics of the World Health Organization indicate that 850 million people have the causes of the infection. They explained to “Today” that patients with kidney failure and those with sad trauma are going through the so-called “Kubler Ross” model known as the “five stages of grief,” and that the family is their supporter. The first, and they demanded to build specialized centers in remote areas and governorates, especially since the health insurance document covers the costs of dialysis, with a maximum of 100,000 riyals.

Al-Khoufi: The timing is different, and noon is better

Citizen Ali Al-Khufi said that his mother, who suffers from kidney failure, has multiple needs; Due to her old age, including: her need for a wheelchair, indicating that the washing times differ from time to time, and that the morning appointments are tiring for his mother, while the afternoon period is the best time, pointing out that the pain continues with his mother for hours after washing.

Sugar and blood pressure are the main causes

Providing suitable job opportunities

Kidney failure patient Saad Al-Saeed added that washing causes them constant suffering. In view of the fatigue resulting from it, pointing out that he transplanted a kidney 15 years ago, and two years ago he started washing, indicating that kidney patients need kidney centers independent of the hospital, to provide a distinctive service such as: providing parking and ease of entry, indicating that there are difficulties that patients go through. It is the jobs where their hygienic conditions and their need for washing are not taken into consideration, while they are demanding a commitment to full time.

He pointed out that under the conditions of the pandemic, they are subject to delays in clinics, and added: The washing was performed in a government hospital and I found better care in private centers, indicating that coexistence with the disease is necessary. They demanded that university seats be reserved for patients with kidney failure, as well as government jobs. He added that he used to work in the private sector, and after contracting the disease, the workload increased on him, so he preferred to move away and join a job with a relative and did not know if the matter would be prolonged or not. Hoping that this segment will find suitable opportunities for it.

Full pay leave for the employee for laundry days

Lawyer Ahmed Al-Maliki explained that the rights of patients with kidney failure are multiple, including: knowing how to act in the event of side effects, seeking another doctor’s opinion about diagnosing his condition, and his treatment plan with the use of clear and understandable terms and vocabulary for him, answering all his questions in this regard, and providing translation services When needed, providing a psychologist and obtaining home care, identifying the attending physician, nurses and caregivers with their job titles, and adequately informing him of the reason for undergoing various examinations and treatments, and who will do so and preserve his privacy, and being cared for in a safe and free atmosphere It is a form of abuse, and he has the right to refuse to speak or meet with anyone who has nothing to do with the health institution and follow up on his treatment, and he is notified if the case calls for transferring him to any other treatment institutions outside the medical health center, according to the regulations and regulations in force in the Ministry of Health.

Al-Maliki added that the patient has the right to know the bodies that he can turn to, whether for inquiries or complaints, and to know the therapeutic and educational institutions that have a direct relationship with his treatment, and to agree or refuse to participate in medical research, which may affect his health care.

He pointed out that the state agreed to the proposal of the Civil Service Council to grant an employee with kidney failure a leave with full pay for the days during which he was dialed by hemodialysis, according to a report from the medical authority that undertakes his treatment. The patients who had organ transplantation were granted a 25% reduction on Saudi Airlines tickets on the domestic sectors by three tickets, in addition to the kidney donor three tickets reduced by 50%, and the Ministry of Human Resources and Social Development disbursed an annual material subsidy for poor kidney failure patients, especially those in need of them. Its amount is ten thousand riyals, and a patient with kidney failure was given 240 kilograms free of “medicines and solutions”, on the domestic and foreign flights of Saudi Airlines, which start in the Kingdom.

Al-Maliki added that among the rights: the inclusion of patients with kidney failure in the care system for the handicapped in the Kingdom, in terms of subsidies, reduction cards and all services provided by the Ministry of Human Resources and Social Development to the categories of the handicapped, and to consider the military person with kidney failure medically unfit for military service, and he is treated under the military retirement system He has 70% of the last salary he received before retirement, provided that the Supreme Military Medical Committee does not recommend that for those in advanced stages of kidney failure and after the patient has exhausted the amount of 90 days hemodialysis leave, and kidney donors continue to work and are considered fit for military service, and in If their condition deteriorates, they are referred to retirement, and 70% of their last salary will also be paid to them.

Sugar and blood pressure are the main causes

The consultant nephrologist at Dammam Medical Complex, Dr. Habib Ramadan, Kidney failure or chronic kidney failure is one of the most common diseases in the world. Adding that a field survey conducted in the Kingdom showed that the percentage of people with chronic kidney failure is estimated at 5.7% of the study participants. While the statistics of the National Study of Health and Food of America showed that the proportion of chronic renal insufficiency reaches 11% of the population (19.2 million injured).

He pointed out that one of the most common causes of kidney failure is diabetes, both types 1 and 2. Among the diseases that lead to kidney failure, high blood pressure, stenosis of the renal artery, chronic heart disease, obesity and urethral obstruction diseases. Other less common diseases are glomerular inflammatory disease and hereditary kidney disease, such as polycystic kidney disease.

He pointed out that one of the most important ways to preserve the kidneys is: Maintaining blood sugar and blood pressure at moderate levels if the patient suffers from them. And maintain an ideal weight, avoid painkillers as much as possible and avoid smoking. As for the most important means of treating kidney failure, it is to treat the cause, if it can be cured. As well as maintaining normal levels of high blood pressure, maintaining a balanced diet low in salt, and about methods of treating final kidney failure, he indicated that kidney transplantation is the best choice. If it is not available to the patient, then there are two types of dialysis. Hemodialysis or peritoneal dialysis, and the patient can choose the appropriate method for him.

5 duties for coping and coping

The family expert, self-development consultant and relationship expert, Dr. Talal Abu Dhra`, that the family is the patient’s first refuge, and it has duties that should not be overlooked towards him, which is the five-year care … and the first concern: providing psychological support to containment, visiting the psychotherapist, and informing him by his family of safety, and entertaining and entertaining the beautiful conversations and their pleasantness to play down on him according to the case Second: Providing medical support by facilitating his access to health care from available specialized medical centers and hospitals, and providing everything he needs, whether it is periodic dialysis of the kidneys, or if it is facilitated to donate a healthy kidney and strive to obtain appropriate treatment for his condition, whether chronic or acute failure, Third: Providing cognitive support By providing correct information about his sickness from its original source, who is his physician treating him so that he knows about his condition and avoids what harms him, Fourth: Providing financial support by guaranteeing his family and striving to fulfill their needs without us or harming and ending the transactions related to that, Fifth: Providing spiritual and faith support by supporting him with wisdom and strengthening his belief in his Lord And patience and calculation.

He pointed out that patients with kidney failure and those with sad trauma go through what is called the “Kubler-Ross model” known as the “five stages of grief,” in which the stages are divided into: denial, “disbelief”, and he may refuse to go to appointments of washing and reviews, and require kindness and persuasion to accept Then the anger stage, and the burden of others and the burden of what happened to him, and at this stage comes the role of the psychotherapist and family counselor to alleviate it, then the bargaining stage, postponing the treatment process and then feeling depressed, and this is expected unless it pushes him to refuse treatments, then the stage of adjustment and acceptance of coexistence with the disease.

He stressed that the patient needs to “understand the nature of his illness, which he feels helpless and weak and requires someone to strengthen him, and understanding feelings of anger to bear his reactions, and understanding with him when he hesitates to attend appointments or some treatments.” He added that the community must provide health and psychological support for patients with kidney failure and the associated pain during the repeated washing process three or four times a week with the painful filtering of blood, which must facilitate its access to service and double the number of devices and the initiative of community members to a culture of organ donation to relieve the pain of patients.

He explained that the greatest psychological effects that affect patients are related to the availability of devices, ease of access to service and proximity to their homes, with the facilitation of multi-storey car parks in the elevator equipped in hospitals, and the provision of clean and equipped facilities with specialized personnel to provide health care that befits them, calling on businessmen And the wealthy to contribute to building specialized centers for the treatment of pathological conditions such as kidney failure, and to be built in remote areas and governorates, as it is one of the works of charity, which pleases God, and one of the most sincere national works that serve the community.

2500 wash sessions scheduled per month

Aban, consultant nephrologist at Dammam Medical Complex, Dr. Yasser Al Abbas, that the Kanoo Center for Kidney Diseases was opened in mid-2001, and in 2019 the general maintenance work began, and during the coming period, washing water purification stations will be renewed, and a complete renewal of hemodialysis equipment. Indicating that the center is currently reviewing about 250 hemodialysis patients at a rate of 3 washes per week, 60% of patients are men and 40% of women, whose ages range from 15 years to 85 years.

Dr. added. Al Abbas, The Kanoo Center for Nephrology currently provides hemodialysis service at the rate of 2500 scheduled dialysis sessions per month and about 240 emergency dialysis sessions per month in the emergency department and the intensive care departments. The center also provides home peritoneal dialysis service to 60 patients who have been trained in the center, while the center reviews about 700-850 patients per month in outpatient clinics in kidney, pressure, kidney transplant clinics, pre-transplant clinics and peritoneal dialysis clinics. He added that patients with chronic kidney failure who are eligible for kidney transplantation and who are visiting the “Kanoo” center are transferred to King Fahd Specialist Hospital in Dammam, which performs about 200 kidney transplants per year.

Today is waiting for a response

Al-Youm contacted the Cooperative Health Insurance Council and sent a number of inquiries about the issue at hand, in implementation of Cabinet Resolution No. 209 on 9/29/1434 AH, which stipulates in its first and second articles that public bodies, institutions and government agencies open channels of communication and cooperation. With the media, answering all its questions and inquiries, and still waiting for a response.

=====================

facts

17 thousand patients in the regions, an increase of 10% annually

Agriculture from donors in the Kingdom is less than 5%

Half a million riyals the cost of laundry for a patient in 2018

International Day:

March 14th

Information when on dialysis:

Ensure the device’s readiness and effectiveness.

Knowing the weight before and after the hemodialysis session.

Viewing the results of the medical tests that are conducted periodically.

Multiple rights

Know how to act if there are side effects

Ask for another doctor’s opinion about the diagnosis and treatment plan

Providing translation services when needed

Provision of a psychologist and access to home care

Identify the attending physician and the nurses

Thoroughly report why he’s undergoing the examinations and treatments

Care in a safe environment free from any form of abuse

Refusal to speak or meet someone who has nothing to do with continuing his treatment

Reporting if the case requires transferring him to any other treatment facilities

Knowing where he can turn to, whether for inquiries or complaints

Knowing the therapeutic and educational institutions that are directly related to the treatment

Agreeing or refusing to participate in medical research





LEAVE A REPLY

Please enter your comment!
Please enter your name here